Today we chatted with Dr Deshmukh regarding Dana's progress.
There were a few questions we wanted to ask and we got all the right answers.
We first ask when could Dana stop sleeping at a 45 degree angle in the recliner. Her neck is not feeling good from all that sleeping at an odd angle. Dr Deshmukh decided it was OK to transition back to sleeping in a bed. However if we experience any spinal fluid drainage increase then we have to move back to the recliner. The only catch is that Dana has to sleep on her back.....she love's sleeping on her side though so this should be interesting.
We get to start to taper off taking the anti-seizure med's so that is a great thing. No more odd dreams and weird naps. In two weeks, we'll be off of them completely.
Dr Deshmukh told me that everything inside the brain will take 4 weeks to recover. Once that 4 week time comes around and things inside are fully healed Dana will definitely feel a lot more energetic and spunky b/c her body won't be needing to divert all it's energy towards rebuilding that brain. He said it's kind of funny how it works...once 4 weeks rolls around bam.....lots of energy but we can't let her run wild just yet.
Once week 4 comes they'll be able to left some of her restrictions (not sure which will be lifted though) so that is exciting too.
All in all a great update and someone is extremely excited to lay in a bed with comfy sheets. I too know I'm looking forward to having her back as well.
Lastly Dr Deshmukh said that he wanted us to stick around CLT until we get to week six. He asked if we had any plans for Easter and if we did lets just say he said to not to do that. Traveling right now isn't a great idea, but soon it will be.
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